Huge Update!! – SDR

⭐️ HUGE UPDATE!!! ⭐️⁣⁣ ⁣⁣ We have some very big and exciting news. ⁣⁣ You may (or may not!) have heard that we went to Leeds hospital for Wilson not so long ago to see if he could possibly have SDR surgery here in the UK. It was a heartbreaking appointment where we were told... Continue Reading →

Dear Cerebral Palsy

I hate you. I hate you so much. You try and rob people’s ability, their chance at normality and independence. I was first introduced to you when my son was just a year old, but you had already been there from the beginning, we just didn’t know it yet. The part of the brain that... Continue Reading →

Exclusion of a special needs sibling

"Oh he’s so cute! Hello!” “I LOVE your wheelchair, is that the Gruffalo on your wheels!?” Just a couple of things that was said to me and Wilson when we were out today at the shops. Luckily he loves the attention and was more than happy to talk to these people, and the others who... Continue Reading →

Raising Awareness

Tomorrow marks the last day of cerebral palsy awareness month, but for thousands of people out there, it will never end. I’ve met so many people through social media trying to raise awareness for cerebral palsy and each and every one of them is truly amazing in their own way ❤️ Did you know that... Continue Reading →

A letter to Wilson’s key worker

It was Wilson’s last day at nursery today. I feel a bit emotional about it actually! Not really sure why as I don’t remember feeling like this when Ava left nursery. Maybe I’m nervous of him starting in a new setting? Or maybe I’m nervous that he will no longer have Louise! Also, I thought... Continue Reading →

I can’t relate

“Special needs parenting is so lonely” “It’s an isolating life being a parent of a child with special needs” These are just a couple of things that I’ve read over the past couple of weeks and I must say, I really can’t relate. I have to mention before I go on any further, this isn’t... Continue Reading →

“Don’t compare”

Any time a mother of a premature baby or a mother of a child with additional needs asks if I have any advice for them I ALWAYS say “don’t compare”  Something I wish I had followed myself when my son was younger. It’s something we all do when we have a child, you look up... Continue Reading →

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