Raising Awareness

Tomorrow marks the last day of cerebral palsy awareness month, but for thousands of people out there, it will never end. I’ve met so many people through social media trying to raise awareness for cerebral palsy and each and every one of them is truly amazing in their own way ❤️

Did you know that approximately 1,800 children are diagnosed with cerebral palsy every year?

Did you also know that approximately 30,000 children in the U.K. have cerebral palsy?

That’s ALOT. But it’s such a misunderstood condition, mainly because no 2 people with cerebral palsy are effected the same so for a lot of people (me included!) it can be a bit confusing trying to understand what it actually is and how it effects people.

Each type of cerebral palsy is categorised using two factors: the type of movement issues and the body part(s) being affected. There are four major types of cerebral palsy: spastic, athetoid, ataxic and mixed types.

Wilson has spastic cerebral palsy, this is the most common type. He is effected in all 4 limbs – but actually he is effected throughout his body. His speech, his eyes, his stomach and pretty much everything else!

Now here comes the confusing part..

One child with the exact same diagnosis as Wilson may not be able to chew, swallow, see, hear, talk or move at all. Yet Wilson’s doing so well, so how can they have the same diagnosis!?

There is also many people out there with a diagnosis of cerebral palsy and you wouldn’t even really be able to tell, perhaps they just drag their foot slightly.

The main part of raising awareness for us is that Wilson is accepted wherever he goes. He doesn’t need to be treated any different, he needs equipment and extra help with a lot of things but that doesn’t mean he should be left out of activities. It also doesn’t mean that he should be first in line or be made to feel any better than anyone else. It’s about equality.

I have learned so much through Wilson, not just about the condition but also about myself, this is going to sound super cheesy but he really has made me a better person. He inspires me every single day. When you see someone having to work so hard with such determination every single minute of every single day then it makes you see the world in a different way. The things you used to think of as being important don’t really matter anymore and the things that you never thought really mattered before now become your priority!

Don’t get me wrong, Wilson can’t be positive all the time and neither can I, we wouldn’t be human if we didn’t have our down moments, but it’s how he takes those moments and turns them into his motivation that really makes me feel incredibly proud.

To everyone who has followed the journey of #WillingWilson so far I would like to thank you, just through liking and sharing our photos and videos, you are helping raise awareness of cerebral palsy and showing everyone that disabilities aren’t a scary thing! People with disabilities no matter the diagnosis are just people, just like you and me.


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