Cortical Visual Impairment (CVI)

Today we found out Wilson has cortical visual impairment, also known as CVI.

This is a form of visual impairment that is caused by a brain problem (for Wilson, my PVL) rather than an eye problem. So his eyes are working perfectly fine but his brain damage interferes with the communication between the brain and the eyes, so Wilsons brain is not interpreting what is being seen properly.

As he is still so young we don’t actually know the severity of this yet and wont until he is older and can communicate a bit more! It can also effect other senses, so theres certain noises and textures that freak Wilson out a bit and make him a little scared! For example, if he is in a room and theres a lot going on this can cause a bit of a sensory overload for him and can make him a bit uncomfortable but the more exposure he gets to these kinds of situations the more he will hopefully get used to it so it doesn’t stop mummy taking him to the play gym! He does really enjoy the play gym especially when playing with Ava but if another child comes near him then he is not happy at all – we are working on that one! Especially as he will be starting nursery next year!

If anyone would like to know more about CVI you can do so here

Wilson does have a bit of a squint that can happen in both eyes, often when he gets tired or excited but they aren’t too concerned about that at the moment, he is going to get regular visits from a sensory impairment specialist and will see the orthoptist every 3-6 months so will get lots of help!


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